Local and State
Developmental Disabilities Resources:
Definition of Developmental Disability
(from North Carolina General Statute 122C‑3)
"Developmental disability" means a severe, chronic disability of a person which:
a. Is attributable to a mental or physical impairment or combination of mental and physical impairments;
b. Is manifested before the person attains age 22, unless the disability is caused by a traumatic head injury and is manifested after age 22;
c. Is likely to continue indefinitely;
d. Results in substantial functional limitations in three or more of the following areas of major life activity: self‑care, receptive and expressive language, capacity for independent living, learning, mobility, self‑direction and economic self‑sufficiency; and
e. Reflects the person's need for a combination and sequence of special interdisciplinary, or generic care, treatment, or other services which are of a lifelong or extended duration and are individually planned and coordinated; or
f. When applied to children from birth through four years of age, may be evidenced as a developmental delay.
Local Resources for Developmental Disabilities
The ARC of Cumberland County
Works to promote the welfare and quality of life of children and adults with mental retardation and other developmental disabilities by improving conditions and providing advocacy. Provides social and recreational opportunities, educates the community about disabilities, and educates parents and those with disabilities about the resources and support systems available to them. A lending library is available with current information available to the community.
Contact: Sharon Ward (910) 867-2141
The Autism Society of Cumberland County
The Autism Society of Cumberland County is a 501(c)(3) non-profit incorporated organization for families of individuals with autism spectrum disorder (ASD). An affiliate of the Autism Society of North Carolina, they provide family support through a wide array of services. Offers support and direct services for families of individuals with autism. Provides parent education workshops, support groups, resource and referral, conference scholarships, summer day camp, teacher grants, and family outings for families of children with autism.
Contact: Jackie PfuntnerPhone: (910) 826-3004
351 Wagoner Drive, Suite 140
Fayetteville, NC 28303
Phone: (910) 826-9100 Ext. 2266/2268
Fax: (910) 868-5881
Website: www.autismcc.org Email: autismcc@ccpfc.org
Cumberland County Department of Public Health
Provides various clinics including a Child Health Clinic for ages infant to 18 years old which provides immunizations, vision, hearing, and sickle cell screening; Adult Health Clinic which provides comprehensive health care for adult clients with Medicare, Medicaid, or those who do not have another primary health care provider; WIC provides nutrition services for women, infant, and children; Dental Clinic services are provided for children ages birth to 14 years of age; Child Service Coordination is a voluntary home visitation program that provides free services to children ages birth to 5 years of age.
E. Newton Smith Public Health Center
227 Fountainhead Lane
Fayetteville, NC 28301 Phone: (910) 433-3600 Fax:(910) 433-3659
website: http://www.co.cumberland.nc.us/health.aspx
Children’s Developmental Services Agency
The Fayetteville Children's Developmental Services Agency (CDSA) is the local coordinating agency for the North Carolina Infant Toddler Program which provides early intervention services for children under 3 years of age who have developmental delays or established medical conditions that place them at risk for delays. Services include evaluation, service coordination, and therapy. Services are covered by Medicaid and there is no cost to families for evaluation and service coordination. Cost for treatment services is determined on a sliding fee scale.
Children’s Developmental Services Agency
Contact: Ann Crane, MS, Director Ann.Crane@ncmail.netPhone:910-486-1605 Fax: 910-486-1590
1211-A Ireland Drive
Fayetteville NC 28304
Assistive Technology Services
Provides resources and tools to assist young children with disabilities to participate in daily activity with greater ease and independence. These tools range from simple aids to sophisticated equipment specifically designed to help children learn and develop.
Contact: Marj Cannon, PT 910)
Phone: 486-1605, 257
URL: www.check-it-out.org
Community Alternatives Program (CAP)
For individuals with a developmental disability who require the level of support provided in an Intermediate Care Facility for the Mentally Retarded (ICF/MR) Criteria for ICF/MR) link, the state offers the option of home and community-based services. Funding for these services comes through a federal program under Title XIX Medicaid called Home and Community-Based Waivers. The CAP waivers allows the state to use Medicaid funding while "waiving" Medicaid rules that require services to be provided in an institutional setting. The purpose of the waivers is to provide integrated, community-based services to individuals with developmental disabilities.
CAP-MR/DD
The Community Alternatives Program for Persons with Mental Retardation/ Developmental Disabilities (CAP-MR/DD) is a special Medicaid program started in 1983 to serve individuals who would otherwise require care in an intermediate care facility for people with the mental retardation/developmental disabilities (ICF/MR).
It allows these individuals the opportunity to be served in the community instead of residing in an institutional or group home setting. The CAP-MR/DD CAP can pay for in-home services, nursing visits, and medical supplies for certain individuals so that they can remain in their own homes for those who qualify for services. http://www.dhhs.state.nc.us/mhddsas/cap-mrdd/cap-discription.pdf
For more information on CAP-MR/DD click here.
CAP/DA - The Community Alternatives Program for Disabled Adults
The Community Alternatives Program for Disabled Adults (CAP/DA) provides a package of services to allow adults (age 18 and older) who qualify for nursing facility care to remain in their private residences. The program is available in all North Carolina counties. The program contributes to the quality of the participants and their families/caregivers, while providing care that is cost-effective in comparison to the Medicaid cost for nursing facility care. For service requirements, coverage criteria and limitations, refer to N.C. Medicaid Community Care Provider Manual – Section 12, CAP/DA
Cumberland County Mental Health Center Local Management Entity (LME)
Cumberland County Mental Health Center is the Local Management Entity for Cumberland County, North Carolina. Their role is to link you with resources and services for children or adults with developmental disabilities living in Cumberland County. They can help to determine the services needed and provide you with a list of providers who are approved to provide these services. The LME is also the local link to apply for CAP MR/DD (hyperlink to CAP MR /DD page)services through the Division of Mental Health, Developmental Disabilities and Substance Abuse Services. The LME also has staff who can advocate for you if you have concerns about services you are receiving or difficulty in navigating the system of care.
Contact: Screening, Triage and Referral
Phone: (910) 424-HOPE (4673); 24-hour Access/Crisis Number
Contact: Advocate, Customer Services
Phone: (910) 222-6111
Website: www.ccmentalhealth.org
Smart Start Early Intervention Program (for child mental health needs)
Provides a child/family centered program which focuses on improving parenting skills for families with preschool children and promoting positive social and emotional development. Also focuses on enhancing knowledge of child development and decreasing child abuse and neglect. Developmental Screenings for children including those being considered for More at Four Services. Training and technical assistance offered. Specialized services for Hispanic families.
Contact: Eileen Cedzo
Phone: (910) 323-2311
Therapeutic Foster Homes ProgramProvides therapeutic foster care services for children and adolescents needing specialized family treatment placements. Services are provided by specially trained and licensed foster families with clinical and case management services provided by therapists assigned to each child.
Contact: Rodney Benn or Rosa Bethea at (910) 323-2311
Consumer and Family Advisor Committee
The Consumer and Family Advisory Committee encourages the active participation of members of communities - the individuals and family members affected by mental illness, developmental disabilities and/or substance abuse who can best represent the perspective and needs, The Cumberland County CFAC meets the second and fourth Thursday of each month at the Child and Family Services Building at 711 Executive Place to discuss and address mental health, substance abuse and developmental disability issues in Cumberland County. Anyone is welcomed to attend. If you would like to contact Cumberland County CFAC members click here.
Website: http://www.ccmentalhealth.org/consumers_and_families/cfac_committee/default.htm
Cumberland County Schools Exceptional Children’s Program
Students with disabilities in the Cumberland County School System receive Exceptional Children’s (EC) services based on the educational need for specially designed instruction when standard instruction with modification is not appropriate. The services emphasize maximized participation in typical settings for students three through twenty-one years of age.
Students receive services in typical school settings from highly qualified professionals, in varying amounts of time depending on individual need. Amounts of service range from consultation and minimal modification of the North Carolina Standard Course of Study to full-time specially designed instruction with related services. All service decisions are specified in an Individualized Education Program (IEP) jointly developed by parents and school teams. Determination of the need for specially designed instruction is determined through a comprehensive, multidisciplinary evaluation process.
Contact: Ruben Reyes, Executive Director
Julie Aul, DirectorPhone: (910) 678-2440
Fax: (910) 678-2620
Website: http://www.ec.ccs.k12.nc.us/
TEACCH
TEACCH is an evidence-based service, training, and research program for individuals of all ages and skill levels with autism spectrum disorders.
Contact: Steve Kroupa
806 Stamper Road, Suite 101
Fayetteville, NC 28303Phone: (910) 437-2517 Fax: (910) 437-2520
Website: www.teacch.com
Easter Seals UCP –Spainhour Center
Provides developmental day center services for children birth through five years old. Children with disabilities and typically developing children receive educational and therapeutic intervention services in an inclusive child care center. Also provides a variety of programs designed to enhance the quality of life for people with disabilities and their families, including physical rehabilitation, individual and family support services, and advocacy programs.
Contact: Lassandra Smith
Phone: (910) 487-0388
website: secure.nc.eastersealsucp.com
Family Support Network of the Greater Cape Fear Region
Provides help in finding information, resources, and services
1211-A Ireland Drive
Fayetteville, NC 28304
Contact: Tina StylesPhone: (910) 486-1605 x 241
Fax: (910) 486-1590
e-mail: Tina.Styles@ncmail.net
Fort Bragg Army Community Services
ACS is an important part of the Army’s program to assist soldiers and their families in meeting specific needs. ACS offers a wide variety of programs tailored to assist Army families living on and off post. ACS is a centralized location to go for answers to your questions and help with concerns or other issues facing military familiies. Programs available are: • Information Referral, Exceptional Family Member, Employment Readiness, Family Advocacy, (New Parent Support, Sexual Assault Assistance, Victim Advocacy Hotline and Information, Domestic Violence Prevention Assistance) Financial Readiness and Army Emergency Relief, Multi-Component Family Support Network, Multicultural Readiness, Relocation Services, Mobilization & Deployment Readiness and Volunteer Services. For more details please visit our website at http://www.fortbraggmwr.com/ACS/acsdirectory.htm
Contact: Barbara Trower-SimpkinsPhone: (910) 396-8682/8683
Website: www.fortbraggmwr.com
Partnership For Children
Focus on Families Community Resource Guide: http://www.ccpfc.org/Research/FRG_Survey/OnlineSearch/
The Partnership for Children of Cumberland County is the nonprofit organization charged with implementing North Carolina's Smart Start and More-at-Four school-readiness programs for children from birth through age five. This organization has a successful record of improving the quality of child care, parenting resources, access to health care, and other support systems for Cumberland County's children.
Focus on Families Community Resource Guide: http://www.ccpfc.org/Research/FRG_Survey/OnlineSearch/
351 Wagoner Drive, Suite 200
Fayetteville, NC 28303
Phone: (910) 867-9700
Fax: (910) 867-7772
Email: info@ccpfc.orgWebsite: http://www.ccpfc.org/
State Resources for Developmental Disabilities
The ARC of North Carolina
Website: http://72.167.22.100/
The Arc Of North Carolina is committed to securing for all people with intellectual and developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work, and play. The Arc of North Carolina communicates with local, state, and national lawmakers. Find out how you can help with different issues:
The Arc of North Carolina
343 East Six Forks Rd. Ste. 320
Raleigh, NC 27609Phone: (800) 662-8706 / (919)782-4632
Email: info@arcnc.org
Carolina Institute for Developmental Disabilities
Website: http://www.cidd.unc.edu/
North Carolina Family-to-Family Health Care Information Center (HIC)
http://www.ecac-parentcenter.org/education/health.htm
ECAC is a private non-profit parent organization committed to improving the lives and education of ALL children through a special emphasis on children with disabilities. They do this by providing information, education, outreach, and support to and for families with children across the state of North Carolina.
Main Office
907 Barra Row, Suites 102/103
Davidson, NC 28036704-892-1321
704-892-5028 fax
Phone: (800) 962-6817 Parent Info Line
North Carolina Neurodevelopmental Research Center
Youths 4 Advocacy
Resources and training for youth and self-advocacy. http://www.self-advocate.org/
Disability Rights of North Carolina
Formerly the Governor’s Advocacy Council for Persons with Disabilities
http://www.disabilityrightsnc.org/Disabilityinfo.gov
DisabilityInfo.gov is a comprehensive online resource designed to provide people with disabilities with quick and easy access to the information they need. With just a few clicks, the site provides access to disability-related information and programs available across the government on numerous subjects, including benefits, civil rights, community life, education, employment, housing, health, technology and transportation. DisabilityInfo.gov is managed by the U.S. Department of Labor's Office of Disability Employment Policy (ODEP), in partnership with 21 other federal agencies. http://www.disabilityinfo.gov/digov-public/public/FindSL.do?categoryId=192&stateId=19&order=text_title&search=Search
Social Security Administration
The Social Security Administration has recently received funding to hire a significant number of employees throughout the country. This hiring initiative offers a unique opportunity for individuals with disabilities who may want to get a job with SSA. These jobs will be at various skill levels including a number of entry-level positions. For more information on these jobs, click here.
State System of Care Handbook
http://www.ccmentalhealth.org/consumers_and_families/c_resources/soc_handbook.pdf
*This Resource Guide is a work in progress. If you have information to add please contact Sharon Yates at (910) 222-6108.